That feel when you’re disabled and know it’s happening but can’t do anything about it. You try to find time to at least do something, but it feels like you’ve dumped one bucket of water out of a boat and in the time it took you to do that two buckets worth of water have leaked into the boat.
I too cannot remember what his face actually looks like. Years of having his face subtly and not-so-subtly shrunken in memes has made any video I see him in feel… uncanny I guess? it’s hard to describe, it just looked wrong.
Getting ready to possibly have to sue my kid’s school district because the state implemented a cell phone ban and the district refuses to address the fact that he has a documented history of autistic meltdowns where he goes into full on Flight mode and has made it out of the building on multiple occasions. He kept getting suspended because he’d barrel through any adult that got in his way until he finally calmed down. At like 8 years old mind you, he’s 14 now. “Oh we’ll just set up a BIP.” Oh you mean that thing your staff and faculty IGNORED for fucking years because there was never any mention of any of the fucking outbursts you’d call me about regarding him hitting someone because they refused to leave him alone and you did nothing about when he told you? That BIP?
We didn’t even want to get him a fucking phone in the first place! That’s the compromise we made with the district years ago because they kept losing my fucking kid, refused to okay any other kind of tracker, and adding him to our plan with a cheapo smartphone was the the only one they’d okay that we could afford.
Sorry for the rant. I get really angry when I think about the way my brother and I were screwed over by the public school system and watching it repeat itself in New and Exciting ways with my own kids.
Good thing I’m only pretending to be an adult with any idea what I’m doing.
My family’s income rose by about 300 dollars per month a few months ago. We immediately lost about 250 dollars per month in rental assistance and SNAP benefits. But it’s totally individual choices that keep us in poverty. If we just budgeted better we cou- Wait. No, scratch that. We also get in trouble for having too much money in savings and assets. We’d actually lose all our benefits before we managed to save up any appreciable amount of money.
I know that you’re trying to help, and I appreciate the sentiment. But that advice is literally meaningless.
Build a company? Doing what? I’ve got 3 autistic kids with varying levels of developmental disability, a partner who we just discovered has a pituitary tumor that’s causing her to have episodes where she loses large chunks of her memory for hours on end or “just” become so dizzy and disoriented that she can barely walk unassisted, and I’ve got chronic joint pain which makes it to where I can barely manage to take care of everyone else along with myself.
We live off government assistance and my partner’s disability benefits. So we have draconian asset/income limits we have to live within to not lose food/housing money. Like several months ago we got approved for an extra like $300 a month for our oldest because of his disability and we immediately lost roughly $250 dollars a month in benefits. We get in trouble for having more than like $3,000 in assets.
We know a handful of other disabled people in the area and we all try to help each other where we can but “where we can” is very few and far between. We’re all barely holding it together out here as it is. We just don’t have the resources.